As more young people have survived cancer,their needs are becoming more recognized. Many of these survivors have been active in creating and/or being involved in developing, many of the resources, organizations, and social networking opportunities now available. Since leukemia is the most common type of childhood cancer, and many patients with leukemia undergo transplants, the selected resources listed below may be of interest those undergoing BMT today. To date, there is no specific resource that we know of exclusively for young adult BMT survivors; however many young people are active participants in the BMT-Talk online discussion list.
Washington State Resources
Pediatric Transplant Survivors Program
Seattle Cancer Care Alliance Long Term Follow Up (LTFU)
Phone: (206) 667-2814 or toll free 1-866-543-4272
Fax: (206) 667-2742
E-mail: survivor@fhcrc.org This e-mail address is being protected from spam bots, you need JavaScript enabled to view it
Teen Zone
Seattle Cancer Care Alliance
Leukemia & Lymphoma Society, WA/AK Chapter
Young Adult Programs
tel. 206-628-0777 x125
Support and Social Networking: US and International
The great need to be able to communicate with others who have ‘been there” has led to the development of peer social networks for cancer surivors, including:
International Childhood Cancer Survivors Network
Survivors Network and Information Resources, International Confederation of Childhood Cancer Parents Organizations ( ICCCPO)
iccsnetwork@gmail.comThis e-mail address is being protected from spam bots, you need JavaScript enabled to view it
