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MAVIN Foundation has created this website, BMT Basics: Resources for Mixed Heritage Families, to help meet the needs of Washington families whose children, up to age 21, need to undergo a blood or marrow transplant, or BMT. The website is part of MAVIN's ongoing committment to ending health inequalities by helping to increase the genetic diversity of the unrelated donor pool so that mixed heritage and other minority patients will be better able find a BMT match when needed. What is MAVIN's interest in BMT issues? MAVIN’s work in the BMT field began in 2001 as the result of a request for help from the parents of a young mixed heritage Seattle girl with leukemia in need of an unrelated BMT donor. As is most commonly the case, no one in her family had matched her, and a search of the national registry of unrelated donors had likewise not turned up any potential matches. |
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Families who have received the news that their child is suffering from a life-threatening illness may be overwhelmed to learn that a blood cell or marrow transplant is recommended for him or her. Not only do parents need a crash course on what will be involved from a medical perspective, but they face an intense family crisis as well. While families of course want a cure, they also need all the help they can get as they embark with their child on a journey through one of the most complex and costly of medical procedures. |
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BMTBasics.org offers both specific information needed by Washington families and looks at BMT access issues from an equity perspective. All patient families, no matter where they live, need information that is reliable, readily available, and easy to understand, on every aspect of the BMT process. Information about the special issues faced by mixed heritage and other underserved patients is also urgenlty needed but has been even more difficult to find until now. Therefore, we hope that this website will make a significant contribution to helping equalize the chances for all our children to benefit from medical advances that now can save lives. |
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